Skip to main content
#
Feeling Ostomistic
Friday, August 26 2016

Today, and as it seems a lot lately, I am constantly met with doubt and disbelief when I share my story/prognosis or the fact that I am 25 and terminal with cancer. It almost always makes me feel like people assume that I am making it up.

For the past year my husband and I have been working on a new segment/section of my blog called 'The Ostomistic Husband' which will be posts and topics written by him and in the hopes of showing the perspective of how a spouse feels or views their loved one's illness. 

So, take it away Russ!

☟  ☟  ☟  ☟  ☟  ☟  

All too often I have Talya tell me how annoyed and upset she is because someone has just told her, “You can’t be dying. You don’t look like you’re dying of cancer so it mustn’t be that bad”.

I’m sure you have heard the same from someone you know with an illness; it seems to be all too common.

I myself believe I have a mild autism which makes me: crave routine; shy away from human interaction; find it difficult to create and nurture relationships as I don’t readily say what I feel inside; have processing issues regarding certain tactile sensations, etc.

These things are not visibly apparent and are not easily discernible even when you are interacting with me.

Why? Because I’ve spent a LOT of time learning how to go about my day, to fit in without drawing attention to myself unless I feel safe to do so. As such, it pains me to hear that Talya is being judged by her outward appearances and not by the effort she makes to display her frightening lifestyle in a manner palatable for those around her. She is always trying to alleviate others…

Fear.

I think that is probably the major force behind the “You don’t look like you’re dying of cancer so it mustn’t be that bad” line.

No-one wants to admit that a young person as outwardly vivacious and spirited as Talya could be dying inside, because that means that they too, may have something as monstrous within them (and not show any signs).

After all, they look fine. Don’t they?

Talya and I see this very differently.

She feels that people are constantly attacking her; sometimes bluntly and sometimes in a back-handed way.

I feel that people are constantly protecting themselves; outright denying the facts about her health (in fear for their own mortality) or suggesting that it can’t be as bad as all that (simply hoping that it could be true, were they in that position).

People don’t want to accept change, they are afraid of the unknown. I get that, more than most.

In the private studies I’ve made on human nature, and by simply watching people react to a situation then react to their own reaction, I believe that people are generally afraid inside (and what a perfect evolutionary trait in self-preservation that is). Some have learnt to deal with that most primal of instincts internally, while others still say, “You can’t be dying. You don’t look like you’re dying of cancer so it mustn’t be that bad”.

All in all, I feel for Talya a great deal in the aforesaid circumstances but I remind her that she is simply better at hiding her pain than some others are at dealing with their fear.

I say, “If they want to blurt out hurtful statements, without understanding what you are going through, to make themselves feel better, that’s on them, not you. But please, see it from their point of view too”.

No-one wants to live in fear.

 

About the Author:
Russell, a husband in his mid 30's, is a computer salesman by day and a unicorn husband by night*. He enjoys long walks on the beach, playing Pokemon Go, he loves lamp, and he loves all things nerdy! He hopes through his writing and sharing of his experiences of having a young and terminally ill wife, might help other men to understand what not to say (to avoid getting yelled at) or how they can better support their loved one. If you want to connect with Russ (or send him topics/questions or areas of concern you have) send him an email via russell @ feelingostomistic.com.au. Russ really loves his wife and wants her to enjoy what remanining time she has, so he has asked for help to build her a garden escape and needs your help ---> click here to read more about the why behind the garden.

*He is the sort of husband that everyone wishes were real, but doesn't believe actually exists.

 

 I ask (if you feel inclined to) that if my blog or my writing has helped you or made  a difference in your life, please consider treating me to lunch or a mango  smoothie by clicking through to my paypal.me account

 I am mostly housebound  so being able to go out for a nice treat would really help  make my day that little  bit brighter. Would also help me to feel appreciated too.

 

Posted by: Russell AT 02:12 am   |  Permalink   |  2 Comments  |  Email
Monday, August 22 2016

NB: This post is purely satirical... proceed to read with sarcasm

Recently, I was called Gross.... I was asked "how can you live like that?"

Well, I can and I do, and it is pretty simple. I wake up, I live my life and do stuff through the day and then I sleep... and repeat! See, easy!

You see, my daily routine is somewhat similar to a 'normal bodied routine'... I say somewhat as it is slightly different as it involves me essentially shitting myself 24/7 (oh the horror) but I can point out many similarities to our daily routines...

A typical day of mine goes like this:

7-8am: I wake up in the morning, and one of the first things I do is go to the toilet. Nothing like that first pee in the morning, except I also have to empty my bag. Which is usually mostly air, as most people fart all night. I fart too, just you don't smell or hear mine as it is trapped in a stoma bag.

8.15: I am sure this is where you take your coffee, the one thing that you probably need to get you through the day? I consume something too, my medication (thyroxine, endone and folic acid), I need these to survive and can't live without.

8.20-8.30: Just as my husband is getting ready to leave for work I call him in for a quickie.... he quickly jabs me and he puts on his shoes and then is off on his merry way. Then he can rest easy all day knowing that he helped to keep me alive that day with my blood thinning injection.

9-11.59am: The elusive siesta... some might call it sleeping in, some might call it taking a nap. You probably prefer an afternoon nap, but I have mine in the morning so by lunch time I am wide awake.

12-1pm: I have lunch.. this may vary day to day from leftovers the night before to eating dry crackers. If I am feeling adventurous I might even go out for lunch.

1-5pm: I would call this my 'work time'. I only have a 4 hour work day and mostly my work involves writing a blog post, designing fun little pictures.. who am I kidding, I am on facebook and shopping.

5.30pm: My husband comes home and cooks dinner. Dinner is usually something fancy like bangers and mash. In our household we aren't atypical to the stereotypes of the roles of a 1950's housewife; my husband does the cooking, the cleaning and the bringing home of the bacon.

6pm: We have dinner, talk about our days (he acts like I actually did more than just sit on fb all day) and then we just watch netflix and chill

7pm: We have our showers, everyone needs to shower. I just happen to need to do a bag change afterwards.. No biggie. We all need to change our underwear everyday (and my stoma bag is the underwear of my stoma)

7.30pm: Husband goes to the study and does computer related stuff (as he hasn't just spent all day around computers) and I go to my office (the dining table) and belt out songs. This goes on until bedtime.

8PM: Husband comes to give me another quick prick for the day, ensuring that he has kept me alive for the night.

10pm: We head to bed and read. Well, he tries to read; I just try to have a chin wag and nag at him about what he didn't do or needs to do the next day.

Annnnnnnd then I go to sleep.... and get ready to repeat it all the next day!

So that is my typical day, but also throw in having to do a bag change whenever I just decide to shit myself (you know because I have control over that and all).

So I am sure there are many similarities to our day... we all eat, sleep and shit. I just do it a little differently to you, but doesn't make me gross. Who wants to be normal when you can just be unique?

Oh, and having a stoma isn't the worst thing in the world.... some people have a stoma as it was either that or death.

It can be rather convenient too!

Imagine you're standing in the long queue at Big W to do the no deposit toy laby, and all of a sudden you need to do a poo! Oh what are your options? Either leave your trolley unattended in queue while you run off and pray that no one steals your loot or your spot in the line, or you just stay and wait and have an accident? Well, for me I can just do a number 2 at any time of the day and it conveniently collects into a pouch (that doesn't smell I might add) and then as it is full I empty into the toilet. No more missing out on sales for me!

But tell me, aside from now pooing differently has your life changed too much with a stoma?

 

 

 I ask (if you feel inclined to) that if my blog or my writing has helped you or made  a difference in your life, please consider treating me to lunch or a mango  smoothie by clicking through to my paypal.me account

 I am mostly housebound  so being able to go out for a nice treat would really help  make my day that little  bit brighter. Would also help me to feel appreciated too.

 

Posted by: Talya AT 07:05 am   |  Permalink   |  0 Comments  |  Email
Tuesday, August 09 2016

I am so excited! Our house that we have been building (for what feels like years), is FINALLY at the 4 weeks to completion point.

Woop Woop!

This means that in 4 weeks we receive our keys and we can start moving in, ending our time as tennants and time to pay off our own mortgage.

This will also be my final house I will ever live in, and if my plan for an at-home death falls into place this will also be my final resting spot... and this is a dream come true, something I never thought I would get to experience.

In my 25 years I have lived in something crazy like 47 houses (I can name every single house) because my parents rented and sometimes we moved every 3-6 months, and then I have moved a lot in my adult life too.

So I am pretty excited to finally have a house that I can make into a home and not have the stress of house inspections and being evicted and having to move EVER AGAIN.

I am also pretty excited for my garden escape to be built and to have a place I can go to escape that is my happy place.... some days I really need somewhere outside of the house I can go and have privacy (and where we currently live that isn't an option as there is no fenced yard).

It took a lot for me to want to ask for help to create the garden escape for me, and I felt that some might feel that a garden was a silly dying wish to have, but it has been something that I really want and need... especially as I am mostly housebound and this is rather isolating and some days I am so down and depressed I don't get out of bed.

I know things will only get worse as time goes on, so I know that I will need this. I used to love going to the botanical gardens when I was sad or angry and it was my happy place, but I can't walk far anymore before being in too much pain so Russ wanted to try and bring the garden to me.

Russ set up a gofundme page to try and raise the funds needed to make this magical garden escape for me, and we have been so humbled and appreciative of all the support and donations so far! The link to the gofundme and to read my story thus far, https://www.gofundme.com/gardenfortalya

For what the working bee will involve (for those who have expressed interest) and my vision for my special garden and landscaping, please read on below. There is two sections: the main special garden (is my priority), but we also would appreciate any help in the rest of the landscaping (such as turfing, creating some gardens, laying pavers, mailbox) etc.

I have had a lot of family and friends ask what help we need in the garden, but also what things we need for the house. So I decided I would write this as a blog post so that I can just send them the link and they can read it, as opposed to me explaining it repeatedly.

Please note: I am not writing this expecting to get things for free, expecting charity or expecting anyone to buy things on our list out of obligation; especially as some of the things we need are costly. But if you want to help in the form of letting me know of a good sale going on, or a tradesperson that you know can help (and won't charge an arm and a leg and is reliable/trustworthy) please let me know! Or if any businesses would like to help out with a discounted price on an item we would be so grateful... I am really wanting to make a home that I can comfortably live out the rest of what time I have left.

1. Why a working bee?
We had a lot of family, friends and members of the community that couldn't contribute financially but said they can help with labour and skills they have, which will be a huge help. We also found that even those that did contribute financially felt they wanted to do more to help us.

As more and more people expressed interest in helping us, Russ and I decided that we would organise a weekend after we had moved in and settled in where we could invite people over to help us with the labour of helping our garden and landscaping. Neither Russ or myself have skills when it comes to building things and neither have had a house where we needed to do gardening, so we really appreciate all the help that has been offered.

Due to my tumours and state of my health, I won't be able to get out in the yard and help, but I am planning a lovely lunch/BBQ for everyone as my way of saying thank you but also making sure that everyone is well fed and has fuel to continue on into the afternoon. [If anyone would love to be my BBQ cook, please let me know].

I also hope that this working bee will feel like a community type project that brings people together and know that they are making a huge impact in my life and helping me to enjoy what time I have.

Once we have moved in and I have more of an idea of dates, I will create a facebook event for people to express interest in the working bee (to help me also to know catering numbers).

No one is to feel obligated to help in any means, we just thought it would be a nice way to bring together people who are able to help out.

As Russ and I have invested all our savings into building this house and paying for my medical expenses (keeping in mind we are a one-income household and are really struggling), we are trying to save money where we can.... so by people offering to come and lend a hand to save us paying someone in labour costs is really helping us out.

2. Help we need for the special garden (and help at the garden working bee):

The gofundme page that was set up by Russell will be used to fund this special garden, at the moment we are at 50% of our fundraising target and most of this funding will be consumed by the pond and water feature installation and the creation of a rock bench and pavers. I also need to buy a fence and gate, plants and koi fish... it would be awesome if we could reach the target goal and I can have the garden of my dreams and my true tropical Oasis... it is quite a big garden measuring 6.1m x 15m!

Below, is a list of the things I dream/envision in my garden escape:

Pond and water feature installation:
As the pond will be the main feature of the garden and as the garden allocated space is large the pond will be rather big as well to really make a statement.

Concrete/stone/rock bench:
I dream of having a beautiful seat that I can sit on when I am sad, when I need to escape from the world or when my stoma is playing up and I need to have a break from wearing a bag. Leading to this seated area that overlooks the pond will be a windy path through my garden.

Bamboo like plant for a screen:
One of the major reasons I need this special garden retreat is so that I can have some privacy to sit outdoors if my stoma is leaking and I just want to leave my bag off and air out my skin... I would feel more comfortable if I had a privacy screen and I feel one that is like a bamboo plant will tie in with the Zen/Japanese feel. Update: Have ordered some plants called 'tiger grass', would appreciate help planting these.

Hardy oriental type plants:
As a part of the pond build there will be a tree installed to provide shade to the pond, but I am hoping to plant other oriental type plants that are hardy in other areas of the garden to make it feel more relaxing.

Pavers and garden path:
I want to create a nice path winding through my garden and leading to my pond and a bench I will sit on in front of the pond. I want the sides of the pavers to be gardens of plants that will grow and feel like the garden is bigger than it is. I would like little miniture grass in between the pavers.

Colourbond fence and gate:
I am needing help to install a colourbond fence and gate to the front of my garden (that is the front side of the house) so that the yard can be accessed if needed but it still provides privacy and screening. I originally wanted this to be a feature rock wall but the costs were going to be $8k so I settled for a colourbond fence and just hope it doesn't detract from the garden space.

A nice big feature rock:
I know this might sound strange but I would love a feature rock in the garden and hope to have moss growing on or around the ground near it. When I die I want to have a plaque fixed to the rock that will be like a headstone. I plan on being cremated, but I want a memorial spot that my family can visit and go to. I want this plaque to read a funny line and my name and the dates (birth and death) along with a quote to help uplift or motivate them when they are sad and down and are visiting my rock. I don't want a grave, and I would only have a headstone if I felt like I wanted a place for family to feel connected to me, and I hope they will find my garden and rock this equilavent.

A bonsai tree:
It wouldn't be a Japense/Zen/oriental garden without a bonsai!

3. Other areas of our garden/landscaping we would love help with at the working bee:

Turf:
We are trying to get turf organised, I think it is 380 square metres but will need help laying it. I am certain between my brothers and Russ this can easily be done, but if you want to lend a hand the more help the better.

Garden Shed installation & concrete slab:
We need to store the mower, whipper snipper and gardeny things (rakes, hose etc) and rather than filling the main garage with trip hazards I feel it might be tidier and easier if we have a garden shed out the back. We are thinking a 3m x 1.5m  or 3m x 0.75 garden shed might be perfect and will allow us to store some trestle tables and plastic outdoor setting too. We would love a hand with installing the shed and laying the concrete slab, if anyone has experience in these please do get in touch (if you can lend a hand). 

Succulents:
I would love to have a succulent garden somewhere, even as a raised timber garden bed, or one of those decorative boxes that go in the centre of a table.

Trees:
I love watching birds playing in trees, and would like to plant some trees that attract birds especially lorikeets. Also love wattle and hoping other trees can be more native/hardy type trees that have a pretty flower and attract birds.

Gardens:
I am wanting simple garden beds with hardy elegant plants. I have some hedge/screening type plants arranged for the front of the house.

Timber trellis/pergola thingy:
If you watched the latest season of House Rules it was the SA backyard transformation by Clare and Hagan that had the timber trellis thingy above the outdoor pizza oven. I would like one of these in the back left corner of our yard with climbing vines going up over the top. We want to put the fire pit under it and some comfy chairs and sit outside and stare gaze of a night. If anyone knows how to build one and can help build me one I would love you forever! We also want to put some sandstone pavers under it too (but like a checkered pattern).
Image inspiration: https://au.tv.yahoo.com/house-rules/31783747/garden-transformation-sa-backyard/31783748/#page1

Mailbox:
I would like something that ties in with the house and doesn't look cheap and is sturdy. I would like a rendered brick mailbox if possible but have seen there are now concrete stone mail boxes with a rendered look which are pretty cool too.

4. Our list of things we need/want (in no particular order of importance):

Air Conditioning:
We know that this will be one of the more costly expenses (aside from the landscaping) and we are starting to research and get quotes for installation of different businesses. We initially need aircon in our bedroom and the lounge room, and later one in the dining/kitchen. As I don't have a thyroid my body gets hot really quickly and adding in menopausal hot flushes summer is really uncomfortable. I even sweat and am uncomfortably hot during winter and need the aircon on.. it is ridiculous I know but healthwise it helps feel more comfortable.

Blinds:
We will need to add blinds to the house and this is another costly expense. The rooms of priority are our bedroom and the media/lounge room, which we would need blockout blinds. We also need a blinde/shade for the glass sliding door from our ensuite to outside. If anyone has any recommendations of companies or installers please let me know. Once we save up enough we will put blinds in the other bedrooms, dining/living room.

Upright Freezer and cooked/frozen meals:

Russ' mum has bought this one for us as a housewarming and is planning on cooking a bunch of meals I can freeze and reheat for dinner, and the frozen meals will help so much.. if you feel like cooking a bunch of meals too I will happily accept!
 

Tea-towels: 

We honestly in 7 years have only ever bought 1 teatowl and it hangs on the side of our fridge... it was meant to be this cool bamboo and super absorbent but it does jack shit! No joke it is useless.. so we end up using towels to wipe up the dishes and I really need FUNCTIONING tea towels that dry and don't leave fluff all over the plates either.

Pillows: 
We need pillows for the spare bed, but also need to update our existing pillows on our bed. We have been using the same pillows since 2011 and they are starting to wear thin and causing head aches and neck strains.

✰✰✰✰✰✰✰

I really cannot wait to get started on the garden and to make this house into a home. I hope those that come to the working bee will enjoy the BBQ.

Much love and so many thanks,

Talya & Russell

Posted by: Talya AT 04:52 am   |  Permalink   |  0 Comments  |  Email
Friday, August 05 2016

One of the hardest parts about being terminal and knowing your life will be short lived, is knowing just how much you will be missing out.

There will be plenty of birthdays, milestones, graduations, weddings and babies no doubt...

But it has really been upsetting me lately knowing that I will be missing so much, and that is hard to deal with.

I also know that if I leave Russell up to the task of buying special gifts for after I am gone, I know not only can he not choose a good present but he is never organised enough to make sure a present is arrived in time.

Heck, I start Xmas shopping around April/May each year (yes I already have presents organised already).

But part of me feels that I should be organised now and start buying gifts and getting cards together for their birthdays, future babies and weddings... but will that be creepy? Like will they be creeped out that I am giving gifts beyond my grave?

Hardest thing is I can't find like a 'etiquette to dying' handbook to tell me what I am meant to do and organise before I die... so I am kinda just winging it. (trust me I have looked... wait maybe that is my e-course or e-book idea?)

I wish everyday that I wasn't dying or that I can continue to grow old with my husband... I wish I wasn't given this shortened life sentence and that I could find a fairy godmother to grant me 3 wishes with one being 'to be cured'... but that only happens in fairytales and I am no Cinderella.

I really want to be here for Russell's 40th in 4 years, but I threw him a pretty cool 35th party (but I didn't tell him it was because I might not get to throw him a 40th). The party was under the disguise of 'half way to retirement' party.... but he had fun and his friends all had fun too. It was a themed party and everyone was to dress up as something they wanted to be when they grew up.

Was a lot of fun, and he asks me if I will throw him another party and I just reply "We'll see" and put on a smile and hold back the tears. I am considering a housewarming party, but we'll see.

Like I know I am not ready to fall off the perch just yet, and I hope I at least have another year or two but I am the sort of person that needs to be prepared and needs to be organised.

But tell me, if you got a gift or a card from a loved one beyond their grave, would you be creeped out?

 

 I ask (if you feel inclined to) that if my blog or my writing has helped you or made  a difference in your life, please consider treating me to lunch or a mango  smoothie by clicking through to my paypal.me account

 I am mostly housebound  so being able to go out for a nice treat would really help  make my day that little  bit brighter. Would also help me to feel appreciated too.

 

Posted by: Talya AT 11:06 pm   |  Permalink   |  2 Comments  |  Email
Thursday, August 04 2016

Back in November 2011, I had not long purchased the latest iPhone 4S and the exciting thing was that there was now this app on your phone that you could enter in your starting destination and your concluding destination and it would find the route for you and verbally navigate you to where you needed to go.

It meant I no longer needed my in car navman, and there was now more room in the cigarette lighter part thingy (insert proper name here) and I could charge my phone while travelling.

So we were headed off to Bathurst (NSW west of Sydney) for one of my best friend's wedding, and we had never been there before so we needed a little bit of help from the nav on my phone.

I entered in our starting point and the hotel details (we were staying at the hotel RIGHT ON THE BATHURST 1000 TRACK.. you know Mount Panorama.. gees listen to my inner bogan coming out) and it brought up the route we were to take.

As we had never travelled there before I didn't question the route offered and just started driving, stopping at Karuah to refill the tank.

We got just past the Newcastle turnoff, and were at this huge roundabout that says "Sydney/Freeway Left Lane" and "Maitland New England Highway Right lane".

My nav told me to take the Maitland New England route... again not questioning it as who was I to tell it how to do it's job.

So we got to Singleton, then we got to Muswellbrook and then we got to a T intersection. The highway continued to the right and to the left was a dirt gravel road.

We were instructed to take this road (the left).

After following it for what felt like hours, we came across a road that had cattle grids all over the road and there was cattle just roaming about. I can't recall where we were but were in the middle of no where.

We kept following all these dirt roads and the occasional tar road when we eventually got to the back of the Blue Mountains... by this point we had been driving for around 8 hours already and I was getting annoyed. There was no service and hadn't had service for hours so I couldn't call my dad and ask for his directions (he was a truck driver and knew his way around).

We eventually found a rest stop (that you had to hike up a mountain to get to) and so we hiked just to try and get service.

I had all these missed calls from my dad wondering how I was and where we were and how far away from Bathurst we were as we should almost be there.

We told him where we were and he laughed and said "how the f$%& did you manage that?" When we told him it was the navman on our phones he said "well I told you technology is f'ing hopeless... you should have used a map and gone via sydney".

So we continued on our travels with the phone directing us, as we had no idea where we were, and we were almost at Dubbo (Wellington) when it took us down through Orange, out through some bush and eventually to Bathurst.

We arrived at the hotel at almost 8PM and 14 hours of driving around the country side.

We were annoyed, we were tired and we had the shits.

On the way home we weren't trusting the navman again and just followed the signs to Sydney then I knew where to go from there.

But what an experience that was! And everytime someone mentions Bathurst or driving out West we say to each other "remember that time our nav f'ed up and sent us through the countryside" and we just laugh.

But we did see some beautiful sites, and haven't ventured back to Bathurst since.

But I am sure I am not the only one who has found themselves on an adventure because of their Nav? Share your story below

P.S if you were wondering, YES I did do laps on the Mount Panorama track.. surprisingly it had only a 60km/h speed limit and even had speed cameras!

Posted by: Talya AT 12:13 am   |  Permalink   |  0 Comments  |  Email
Monday, August 01 2016

Last year I heard about this incredible organisation called Share the dignity, which is a charity that helps to support homeless women and women in need when it comes to 'that time of the month'.

Their slogan is "no woman should have to choose between buying food or buying sanitary items", this really struck home for me.


Image courtesy of the Share the Dignity facebook page

When we often think of homeless or poverty we imagine people living on the streets, in their cars or in refuge shelters. But this isn't always true. You can have a roof over your head and be poor or poverty stricken.

According to the Australian Council of Social Services (ACOSS) there are 2.5 million Australians living under the poverty line, which for a country deemed 'the lucky country' that seems like an awful lot to me.

When the campaigns from share the dignity were being shared around on social media, there were comments that I observed that went along the lines of "that is an exaggeration surely, you aren't that poor that you can't afford pads or tampons or choose between that or eating"... as I said it was the general gist of the conversations going round.

But I know firsthand how stressful and hard it is when you do get your period and you honestly have to make the decision between buying pads or food... because it happened to me on several occassions.

When I was a teenager I felt embarrassed each month to ask for pads or tampons as I knew they were another expense we couldn't really afford (and I felt guilty asking). So when I got my first job I was rather elated that I could take responsibility for myself and I had money to buy pads and other personal care items I needed. I was independant and I didn't have to ask to buy them as I was in control of my own money.

I took living at home cheaply for granted and it wasn't until I moved out of home that I realised that rent and living expenses are so costly!

The day after graduating year 12 (Nov' 2008) I moved to Brisbane and was living in share housing. My rent was $100 a week and all the utilities were shared. I needed to pay for a train ticket to and from work and leading up to Christmas I had a lot of work and was doing okay... then Christmas came and went and the hours dropped to 8 hours a week which was $80 there about. I wasn't entitled to centrelink as my dad earned too much (even though he wasn't financially supporting me, it didn't matter to them). I was struggling to find another job and I was struggling to pay my rent and had to keep borrowing $20 off of a familly member each week to cover my rent. I didn't have money for food, I didn't have money for the train, I didn't have money for pads. I tried to stay at my boyfriend's house through the week so I could eat... it felt so humiliating!

Then my plans to study at university in QLD fell through, and I was offered a HECS supported place in Coffs Harbour so I moved. Centrelink finally offered me youth allowance which was $290 a fortnight. The house I was renting was $145 a week so my centrelink was consumed by my rent. I had to resort to borrowing $20 each week (off of family) so that I could buy food and pay for the bus to uni (I couldn't afford petrol). I tried so hard to find a job but I kept getting knocked back. I was a struggling uni student.

But there were times where I had to choose between food or pads, and it was a difficult decision. I have endometriosis so my periods were always rather heavy and it meant that I needed more than 1 packet of heavy pads each month, and I am allergic to pads but found the Libra overnight pads to irritate me the least (but they were costly)... but for that week that I had my period I was literally living off of those cups of noodles that you add hot water to and it cooks it... there were nights where my housemates took pity on me and would cook extra food that night so I could eat properly.

Then I moved into a cheaper share house where the rent was only $120 a week so out of my $290 a fortnight payment I now had $50 a fortnight. I felt so rich! I didn't have to call up family desperate for $20 anymore and my housemates cooked everynight and were happy if I gave them money towards groceries and they let me eat with them... also meant I had money for pads each month.

Unless you have been in that situation, you don't know how satisyfing and what a relief it feels to know that you don't have to choose that week between eating or buying pads.

At the end of 2009, my situation changed and I moved in with my then boyfriend (now husband) and his rent was only $180 a week so we went halves and it meant my fortnightly student allowance could go even further.

How you can help to share the dignity.....

So this August I ask you when you're next doing your groceries to buy an extra packet of pads or tampons and drop off to one of the Share the dignity collection points, so that they can be distributed to charities such as womens shelters to help women in need to have dignity when it comes to their period.

To find a collection point or learn more about what they do, visit their website.

P.S they also have a #itsinthebag initiative where they ask you to fill a handbag with a list of essential items and it is handed out to homeless women at Christmas. I am working on 3 of these handbags to pass on, these are handbags I was no longer using (and still in good condition) so what a better way to give them a new purpose! Find out more about this campaign here.


Image courtesy of their facebook group

 

 I ask (if you feel inclined to) that if my blog or my writing has helped you or made  a difference in your life, please consider treating me to lunch or a mango  smoothie by clicking through to my paypal.me account

 I am mostly housebound  so being able to go out for a nice treat would really help  make my day that little  bit brighter. Would also help me to feel appreciated too.

 

Posted by: Talya AT 02:10 am   |  Permalink   |  0 Comments  |  Email
Facebook
Twitter
Google+
LinkedIn
Email
Add to favorites


~  Living with Familial Adenomatous Polyposis - Effects of FAP  ~

FREE Pattern

With thanks to Harley B for this
FREE pattern. Full tutorial is on
my blog
. Have fun creating!

Pattern ©Harley B Handmade 

 Latest Posts 
 Categories 

Have you heard about our new eZine? CLICK HERE to learn more!

 

Talya Goding - Feeling Ostomistic   talya@feelingostomistic.com.au  |  0447 426 860

Thank you for stopping by Feeling Ostomistic. It has taken a lot of courage to share my story and I ask that you show me and my site/blog respect and courtesy. Views expressed in this blog are my own and I am not a nurse or a doctor. If you need medical advice please seek your medical practitioner.

Copyright © 2017 Feeling Ostomistic. All Rights Reserved. Logo by Made by KaleWeb Design by SiteFresh