Sunday, June 17 2018
Calling all young females (u/55) living on the Mid North Coast or Coffs Coast with a stoma, check out this exciting and new FREE event happening in August!
My stoma nurse has been excitedly organising this event and I was honoured to have been asked to design the flyer, but I was even more honoured to be asked to speak on the night as one of the speakers.
☞ The event is FREE and is open to all women with a stoma and under 55 from the area, if you're willing to travel you can come along, just make sure you RSVP.
☞ If you have any dietry requirements aside from the stoma, let the stoma nurses know and call 0266567804, that way everyone is catered to.
☞ The night is going to be a fun night with the chance to get to meet other young ostomates under 55's and the hopes of connecting each other to form friendships as ostomy life can be rather lonely for some.
☞ There will be a fun activity for all to join in and will also have reps from different ostomy companies there with samples or to speak more. Guest speakers will include Allied health professionals as well as myself.
☞ This event wouldn't be at all possible without the fundraising done by the Coffs Coast Crafty Crew (scrapbookers) in April 2016, as well as the hard work from the organising team of stoma nurses.
I am really looking forward to the night, and looking forward to meeting others from the area. Whether you're from Port, Grafton or in between this event is open to anyone who would like to come, has a stoma and is under 55 and a female.
Did I mention it is FREE and catered?
Can't wait and I will see you there!
Monday, January 08 2018
I know there has been a lot of posts around social media this past week (well, more so New Years Day) about the whole 'non resolutions' or how people were dropping the making resolutions as they either never stick or it makes people feel overwhelmed and anxious. This has something to do with the pressure placed on how it is a "new year new me" and that you internalise this pressure for the need to change yourself.... so it gets pretty depressing when it is the end of the year and you are yet to do one thing you set out to do.
Well, I know for me I get horribly depressed each December when I realise that none of my unrealistic/unattainable goals weren't met, and I feel like a bit of a failure and get pretty hard on myself.
So this year I plan on doing something a little different... I give up on each year setting myself the task of finding that million dollar idea (maybe if I don't try so hard I will find it), or to feel bad that I didn't finish my uni degree, or that I haven't got a hot bod (#sorrynotsorry).
I am choosing 18 ACHIEVABLE things I want to accomplish in 2018.
#1. Self Care:
I purchased the ebook version off Amazon and by a quarter of the way into the book I was astonished, I could have sworn it was me who had written this book as it was just so incredibly relatable. It definitely has me hooked!
Self care isn't necassarily just candle lit bubble baths with a glass of bubbly and reading a book, it can be a whole range of things. It could be doing things that make you happy, here is a post I wrote back in 2016 about 5 things to do each to add happiness or meaning to my day. You could choose to meditate or do yoga, could do a course or learn a new skill, could do something on your bucket list, could volunteer, do a random act of kindness, buy yourself flowers, get pampered, get your hair done or watch a movie or show.
#2. To read more:
So I have been so focussed on micro managing every part of my day/life that I would say I was too busy to read or I didn't have the time, but I vow this year to make time to read more. Whether it be the ebooks I have stored on my ipad or tablet, or going old fashioned and reading the amassed pile of books I have acculumated over the past few years. So starting with reading "The Self-care project" I am setting myself the challenge of either reading 1 book a month or 18 books this year.
Let's do this!
#3. To say No more:
In saying this though, there will be times where I say no simply because I am physically unable to do something due to pain or health, so I am sure this will cause more stress as some might think my health is an excuse? As I said, a challenge... but I am not putting my health at risk for a ridiculous deadline anymore.
#4. Reducing waste:
One of my favourite quotes from Gandhi is "Be the change you wish to see in the world". Change is hard and takes patience and a lot of baby steps, but you can't expect the world to be better or changed if you don't play a part yourself.
So I have ordered some produce reusable bags from my Sister-In Law's business which will mean no longer using single use plastic bags for produce. We also plan on using environment friendly bags in replace of plastic bags and I hope to get a compost happening too.... as I said it will be hard, but I do hope it will help the environment.
I feel guilty sometimes being an ostomate, because my base plate and bags aren't biodegradable (that I'm aware of) so even if I used bio degradable garbage bags and buried it, it still wouldn't break down and would be just the same as putting it in the bin. So I hate having a bag that leaks multiple times a day as it means a lot of ostomy products are used and thrown away, and I feel guilty that I am impacting the environment.... but it can't be helped.
So if I can make changes in other areas of my life, it hopefully makes up for it somehow?
#5. See the snow:
I had always hoped to get to the US or Canada and see this in person myself, but while that dream won't happen, I am happy to settle for somewhere in Australia where it snows, there is a romantic log cabin with a fire and somewhere Russ and I can unwind and relax.
I have heard him say almost daily the past month that he truly wants to experience this with me. Watching all the romantic Christmas movies helped I think, but it has had him rather upset realising too all the things he wants to experience with me but not sure if we will.
It is hard sometimes trying to squeeze 80 years of experiences into as much time as we have left.
If you have suggestions, do let me know, I can't fly so anywhere that is easily train accessible or short driving trips in NSW will be best.
#6. Learn something new:
I am doing a course right now cert 4 in screen and media and learning at the moment how to write children's stories.
#7. Write that damn book:
#8. Write a blog post a week:
#9. Write a journal:
All of these writing cues would be kind of life self care I guess, since it is cathartic and all.
#10. Regularly meet with a counsellor:
I guess this would come under self care and taking time for my needs too.
#11. Go Swimming:
Don't worry I plan on being sun safe and have my SPF50+ rashie from SunSoaked and my Sunbella parasol to help me too.
#12. Go Glamping:
#13. Have a holiday:
#14. Explore the Coast:
We still have bucket listing adventures for Brisbane, Sydney, Newcastle and beyond. I am just wanting to see so much!
I am just really hoping to see/experience new places this year.
#15. Renew our vows:
I had always said when we get to 10 years we would renew somewhere fun and overseas, but not sure that dream of international travel is managable or if I could make it to our 10 wedding anniversary.
#16. Get back on our feet financially:
We tried to apply to several other banks who all declined us because we didn't have savings (everything went into our house) and so we had hoped to even consolidate everything into one loan to make repayments easier and more affordable but were declined. Despite having equity in the property. It is hard to have savings when every cent is going into the house, our debt, living expenses, medical expenses and the list goes on.
I am just hoping this year we have better luck and if we can't at least consolidate everything that we can find a new bank for our home loan. I just want out of their grip, just like Britain wanted out of the EU. If we can get a new bank and debt consolidation everything will be more easier, we might even afford a mini holiday.
Part of this is finding a new bank too. I just want and need everything to be tidied up and managable ready for Russ to take over when I die.
#17. See a waterfall:
#18. Try to get my pain under control:
I spent the better part of last year struggling with my pain. I know my doctors are doing their best to manage it, but it really is hard and affects so many aspects of my life. It is debilitating, exhausting, it makes me frustrated and irritable, it messes with my mental health and it just sucks. It is hard to manage getting out of bed most days let alone manage an hour of getting out and about. I missed out on a lot last year and I don't want to miss out on life this year because of pain.
☟ ☟ ☟ ☟ ☟ ☟ ☟ ☟
I know it was a long post, but I thought 18 made sense since you know it is 2018 and all. I feel good that it is all written down but now overwhelmed, which is ironic, but I will do seperate posts throughout the year both here and on social media documenting how I go... it means I can hold myself accountable now since I have told you all about this.
My list honestly could have continued such as "yet to finish unpacking", "yet to manage that room makeover" and so on. I just decided to choose things that will either improve my life, bring me joy or are somewhat achievable for this year.... and if I win the lotto that is a bonus!
Russ asked me what I have been writing/working on the past couple of days, he then rattled off a list of 18 things he *felt* I should do instead which all involved him and were very much Russ focussed or specific. I laughed and said, your list kind of defeats the purpose of several things on my list like taking time for me and saying no and putting me first.
To be fair, his list was most of what I do anyway which was:
Here's hoping 2018 is a good year and that I can do some of these things if not all. Despite spending over 80% of the year in bed last year, the times I did bucket list stuff or was out and about are some of my most cherished memories looking back, those memories I remember on my bad days.
I wish you a HNY2018 and wishing you health, love, success, happiness and clarity this year.
Thank you for reading, feel free to share something you hope to do this year in the comments below:
Sunday, July 31 2016
For those who have been following along through my mirco-blogging on my Facebook page would know that I recently (about a month ago now) entered into the care of Palliative Care and that my chemo and treatment options stopped.
I will write about that on my blog shortly, just been hard finding the words to say.
But since then I have wanted to make a point of living life and not just existing like I have been, especially while I was on chemo. It was making me so sick that I really didn't feel like myself anymore and I spent a lot of time in bed or on the lounge and I was just existing.... and I really wanted to experience new things and make memories.
So the week after my treatment stopped I went away on a Canteen over 18's camp and had a ball!
When I got back it was school holidays so I had my 14 year old sister come and stay for the week. I wanted to have such a fun filled week planned that I wasn't really looking after myself and resting (especially after such a big week with the canteen camp the week prior). But I found a chemist that was offering FREE makeup lessons to teenage girls in the school holidays, and she really enjoyed learning about how to apply a natural makeup look perfect for school. The next day we went and got pampered with manicures, pedicures and facials (I had never done these before). I even took her to brunch to my favourite spot by the waters edge, and that night we went to Hogs Breath for dinner and she said it was the best steak she had ever eaten!
Then it was time for her to go home, and when she got picked up my other sister (15 year old) got dropped off for her week to stay.
I felt so guilty while she was staying with me, as I was so tired from the previous two weeks, that all I wanted to do was mostly rest and take it easy. She was okay with it as she was enjoying the quiet and break from all the other siblings. I organised the makeup lesson for her too, and the chemist even had a VIP beauty night which we went along to and she won the lucky door prize! I also took her to brunch, but didn't take her to be pampered, frankly I couldn't afford it again (I did buy her something as a consolation prize).
It was nice having my sisters stay with us, they were both so helpful and willing to help me around the house or help me if I was trying to walk or climb stairs... we didn't want them to go home, it was nice having a youthful feeling in the house.... but mostly I was loving having company of a day and someone to talk to and not being lonely while Russ was at work.
So last weekend was our 6th wedding anniversary and we decided to go away for a few days and stay at a cabin at South West Rocks. We dropped my sister off at her house on the way, then we went Pokemon hunting for an hour or so and then we checked into the cabin and had a nap. I was so exhausted! The cabin was rather nice had 2 bathrooms which were rather spacious (just what I need and prefer) and it was right by the water's edge.
We went out to dinner that night to celebrate my brother's early 21st birthday with all the family and had a rather nice meal, then we went Pokemon hunting again, this time with my siblings. We had our 11 year old brother with us, but we lost track of the time and soon was 10PM and there were messages from mum to get him home as he had school the next day (whoops). But he was loving it.
Then we had a nice sleep in the next day (Monday) and decided to go to Port Macquarie to lunch (all you can eat buffet) and then go for a huge walk and pokemon hunt.
Palliative Care hired a wheelchair for me to try and to help me get out and about more for walks with Russ and to make things less painful for me.
I was rather nervous using the wheelchair for the first time, was worried people would stare or laugh. But people smiled and nodded, and I was holding both mine and Russ' phones and catching the pokemon... I have the two phones at once skill down pat.
Our walk was about 2 hours and I think we did 4km or so in total, Russ was feeling rather tired and I was starting to get in pain so we decided to head home while it was still daylight.
Right where our car was parked in Port Macquarie there was a wall with painted angel wings, and a sign that explained what it was about. You are to stand in front of the wings and take a picture and upload to social media using the hashtag #ifweallhadwings and it was to raise awareness of a NFP (not for profit) in Port that helps to alleviate the financial stress for someone undergoing cancer treatment. Here is my picture below.
So we headed home (well back to the cabin) and ordered Chinese for dinner and had a nap... I didn't realise how late it was and I had promised my siblings that I would help them with assignments and it was 8PM when I realised the time... so we called around to my brother's to give him his birthday present and see him before we headed home, then a quick pokemon hunt and it was bed time.
I started crying when we were in bed, as I hadn't felt so alive and happy like I had those past few days and I was dreading going home the next day... I was trying to convince Russ to stay another night in the cabin but he said we really couldn't afford another night. He said if my nan would let us stay at hers that we can stay another night, I could see mum and the kids a little more and have dinner with them and then I could catch up with one of my oldest and dearest friends the next morning for a cuppa before we left.
So my nan said "of course you can stay" and so we did.
When we left on Wednesday we had to make sure we left Kempsey by 10AM as I had to be in Coffs by 12PM. For months I had been looking forward to Turia Pitt coming to Coffs and speaking, and it is something on my bucket list to hear her speak and hopefully meet her. I just think she is so incredible with what she went through and how she doesn't let anything get in her way of achieving anything, she sets her mind on something and works her ass off and she makes shit happen... I had a few friends hear her speak and spoke of how incredible and inspiring her talks were.
So I went along to her talk (along with my nan and her sister) and we had a nice lunch and then Turia spoke. She made us laugh, I know I cried, but she really inspired me.
and guess what...
Afterwards I got to meet her! I asked her to sign a copy of my book (her book she wrote) and told her that it was on my bucket list to hear her speak and she said "well mate I am fucking honoured".
I walked out of there trying so hard not to cry, not sad tears but really happy elated tears you have when something you have wanted came true and I was just so full of emotion and excitement... she really is remarkable!
So that brings us to Wednesday night and I was so exhausted I went to bed early and woke the next day with the flu, Russ was sick too and only returned to work yesterday. I felt better yesterday (from the flu) but was in bed dealing with girl issues... it has been over a year since my last period and it returned yesterday and has been rather painful... so I have been pretty much back in bed since Wednesday night.
But my pain is a bit more controlled now, just taking pain meds more regularly and it is helping a lot.
So that is my recap of the month that was July, was a crazy busy month... next month might be as crazy (we hopefully get the keys for the new house... IF IT IS FINISHED urgh it is taking forever) but I am in LOVE with my new kitchen.
Thanks for all the support and for following my journey.
Saturday, July 30 2016
I am sure by now you have heard of Pokemon Go, the gaming phenonemon taking over the world.
If you haven't you might be living under a rock, as it is this game that was released about 3 weeks ago and has so many people playing and socialising just to play the game... heck it is even tricking you into doing exercise!
My husband started playing the day it was released here in Australia, and I only started playing it 7 days ago (and I am already up to level 15, half a level behind my hubby who has been playing for 3 weeks).
When I was younger I loved watching Pokemon on TV and even played on my gameboy advance, so when it was released I knew it would be pretty awesome to re-live some pretty fun childhood memories (afterall, you're never too old to be a kid).
But two of the reasons I was so delayed in signing up and playing Pokemon was 1. I have a bit of an addictive personality 2. I can be pretty competitive but 3. It is hard for me to get out and go walking/driving on my own and I didn't want to be stuck at home feeling down and disappointed that I was missing out, which in the end I was feeling that way anyways so I created and account and started playing.
Boy what fun it has been this past week though!
We went away (my husband and I) for our wedding anniversary and stayed close to where my family live, so we got to go Pokemon hunting with my siblings (which was a lot of fun) and we even went to Port Macquarie for the day where we went for a massive walk (4km in total) and my husband pushed me in my wheelchair, then we got home on Wednesday and went for a 3km walk through the botanical gardens here in Coffs Harbour (there is so many Poke stops and pokemon there).
But the highlight for me has been waiting for my husband to come home each evening and we go searching for an hour or so for the Pokemon, it gives me something to get out of the house.
It has become a fun thing that my husband and I can share and do together, and we are having so much fun!
HOT TIP: Before you start playing do your research (google search) for articles on tips, tricks and resources to help you play. I wish I had of done that before I started playing so I could fully understand how to get the most out of the experience.
But over my week of playing, I have come across some ways to help you not only play better but also to play safely.
#1. Find a friend to be your Poke' buddy
#2. You will find more pokemon in more populated areas
#3. Use caution and common sense when playing especially at night
#4. Invest in a portable phone charger
#5. Unless you plan on battling your Pokemon get rid of unessential items
#6. Berries can help you to catch a pokemon
#7. Capture as many Eevee's as possible
#8. Capture every Magikarp you find
#9. Save your lucky egg for a bulk evolving spree
#10. Use the incense to draw Pokemon to your location
These are just a short list of tips and tricks I have used to not only play efficiently but safely, but you can google 'Pokemon Go tricks' for a lot more hints. But if you have any hints or tricks you have used and isn't mentioned above simply leave a comment below (or join the conversation over on our facebook page)
Most of all have fun but be safe!