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Feeling Ostomistic
Monday, October 15 2018

I posted on social media the other night (well, last Thursday) a teasing photo of a delcicious hearty stew I had brewing in the Slow Cooker, it sparked so many asking for the recipe, so here is the stew recipe and story behind it.

Please note: I have not been paid by any of the companies I mention when it comes to ingredients I use, you can always opt for your own preferred company of choice, but this is my stew and how I have made it for over a decade.

Story behind the Stew:

I first learned about this stew when I was staying over at a friends house in year 12 and we went to spend the day at her Grandmother's house and she said "girls since you're leaving home soon I better share an easy stew recipe". So we cooked it and she talked us through it and she gave me a copy, I started experimenting making the stew and adding in different ingredients and was determined to make it my own.

It is one of those stews that are perfect for wintery cold nights or if it is raining outside and will be rainy days ahead it is nice to just pop the stew on to cook in the slow cooker and wait for it to cook, meanwhile enjoying the smells as they fill your house for the next 8 hours.

I also find that we can get a few days worth of meals out of this, we put as much as we can into chinese containers and pop them in the fridge and freezer, but one chinese container is one bowl full for one person.

But don't ask me the calorie intake, I have no idea but it is just delicious, and Russ loves it too! You'll want seconds it is so good!

You will need:
 Ingredients, see below
A slow cooker
Knife
Measuring cup
Big ladle or soup stirring spoon

Ingredients: (I get all my ingredients from my local Woolworths)

1 x large bbq chicken [ or you can cook your own chicken, ] for time management and ease I use a BBQ chicken (it is the most costly component), sometimes you can find cold chickens which is just as good to use and cheaper too
2 x cans of Campbells Canned Soup Cream Of Chicken & Corn 420g
OR 1 x can of the previous with 1 x can of Campbell's Canned Soup Cream Of Chicken 420g
2 x cans of hearty or chunky vegetable soup (select brand is fine, sometimes i get one cheaper brand and one of the campbells range)
1 x Continental Cup A Soup Creamy Garden Vegetable 2 Pack 2pk 70g (use 1 pack and keep one aside for next time)
1 x Continental Cup A Soup Creamy Chicken & Corn With Croutons 2 pack (use 1 pack and keep one aside for next time)
1/3 a bag of San Remo Shells Small Pasta No 28 500g
1 x cup of water, cold is fine
1/4 a bag of Woolworths Carrots Peas & Corn 1kg
2 or 3 carrots (depending on size) chopped in chunky pieces roughly 1cm in width (skin left on)
4 or 5 white spud potatoes (with skin left on) chopped in halves or quarters depending on size
1 or 2 sweet potato (depending on size) chopped in maybe 2cm pieces then chopped again into halves or quarters depending on size of piece
You can add in broccoli or cauliflower, sometimes I will add in fresh pieces or I will use a winter vegetable pack of frozen chunky vegetables

*

I think that is all the ingredients, now for the making of it

Steps:

Step 1. Locate your slow cooker and plug in to power, add 1 cup of water and turn to high

Step 2. Wash your fresh vegetables like sweet potato, carrot, potatoes just wash but keep skin on (when it is ready the skin just easily fall off), if you're adding in fresh brocolli or brocollini or cauliflower wash these too.

Step 3. Add in the cans of Campbell's condensed cream of chicken and corn or cream of chick soup cans into the slow cooker.

Step 4. Add in the canned vegetables.

Step 5. Add in the Continental cup a soup creamy garden vegetable and creamy chicken and corn with croutons sachets.

Step 6. Mix all the soup together

Step 7. Next add in the BBQ chicken by tearing off small bite size pieces but not adding in the skin, bones or stuffing

Step 8. Mix the chicken and soup mixes together

Step 9. Add in the shell pasta and mix it all together, add more if you think it needs more, but not too much more.

Step 10. Add in the pieces of cut chunky fresh carrots, sweet potato and potato. Stir it all together.

Step 11. Add in the frozen vegetables and stir it all together.

Step 12. Leave on high for 2 hours, check roughly hourly and stir, it can be messy as it will rise and thicken as it cooks.

Step 13. After 2 hours turn to low for 6-8 hours and check hourly and stir

Step 14. Leave it on low for another couple of hours if you think it needs longer.

IF DISCARDING STEP 14, turn it off and serve.

Step 15. ENJOY your delicious thick stew

* We love to buy the packs of dinner rolls from the woolworths bakery and pop in the oven so they are hot and fresh for when we serve up our dinner, we cut them along the tops and we stuff spoonfulls of stew in there and then eat it like that. We also use bread not toasted but buttered to scoop up the soup and it just is delicious.

Step 16. Fill up containers, we use takeaway chinese containers and pack these to the brim and pop 3/4 in the fridge and 1/4 in the freezer. We find with the 2 of us we can eat this for lunch and dinner for a few days using the fridge containers, often Russ goes back for a second bowl.

My observations:

I have made this when I have had my kid siblings come and stay over the years or my MIL and they have loved the stew. It is so easy to make and all the effort is in the preparation and the slow cooker does the hard part. I would cook this if it were cold and miserable weather, or if it is raining, nothing says snug as a bug as a hearty winter stew whilist nestled under blankets enjoying a movie.

We made this Thursday night, and I say we as I sat and supervised Russ and told him what to do as I wasn't up for standing in the kitchen for even half an hour or less (pain). But Russ loves when "we" make stuff together, he loves learning how to cook some of my meals that he loves.

We started cooking this at 7pm Thursday night and was cooking when we went to bed, and the aroma wafting through the house had my tummy rumbling all night. We would check it every hour and then we turned it off and put it in chinese containers and went back to bed. So it was exciting to wake Friday and have stew for lunch, and dinner and we still have a couple of bowls left.

But I have to be careful with my stoma, luckily all the veggies and chicken break down so soft they just fall apart and then i try to take the skin off to avoid a blockage, but as I have had so much and it has caused my output to be rather thick and caused a blockage, so just keep that in mind if you're an ostomate prone to blockages that it does make things thick.... but it is so delicious!

Our Slow Cooker:

This is an adorable story, we got our slow cooker the first Christmas we were together (2009). We spent Xmas Eve with Russ' family who were up from Melbourne as we planned on spending the next day with my dad and family. So we unwrapped our gifts and our joint gift from Russ' family was a George Foreman slow cooker. I was so excited as I had been saying to Russ I wished we had one as I was missing being able to cook my stew. 

So the next day we went to Xmas at my dad's and he handed us a joint Xmas present which was a slow cooker! we laughed as what are the odds of getting 2 slow cookers! I was really appreciative and thanked my dad but Russ' mum made a comment how she beat them to it and we had one already, so dad took it back to the store as it was unopened ( we already opened the one the night before as I was keen to make pinterest desserts) and he bought us something else. 

I remember one Xmas dad wanted an electric sander so he bought one for mum so she could use it, and that same Xmas mum bought dad an electric sander so she could use it. It still makes me smile even though I was 10, it made me laugh that Xmas with the slow cooker remembering the electric sander gifts.

So we have been enjoying our slow cooker for quite some years now, I used to use it more when I could easily jump in the car and go get groceries and was more independant, but I am wanting to make slow cooked lamb shanks for Russ next winter.... but I have been trying to convince my nan to get a slow cooker as she would love it, pop the meal on in the morning and smell it cook all day. 

Tell me, what is the favourite slow cooker recipe of yours? Mine is definitely my hearty stew.

If you do manage to make this please let me know how you went!

 

Posted by: Talya AT 06:44 am   |  Permalink   |  0 Comments  |  Email
Monday, August 20 2018

I think this title is appropriate as we were served chicken for dinner at the awards night, sorry just being cheeky.


Me holding my award and framed certificate

On Friday the 17th of August, Russ and I drove up to Brisbane to attend the 2017 Great Comeback awards held by Convatec. I know we are in 2018, but it was 2017 when I applied and so the award is for last year but it is in this year which is confusing, but anyway, I won!

I was 1 out of 5 finalists from Australia and New Zealand.

It was such an honour to have been made a finalist, and I was incredibly shocked and surprised to have found out on the night that it was me who had actually won! There were so many deserving and inspiring finalists who have incredibly powerful stories to tell.

On the night at the awards ceremony, which was held in the brand spanking NEW boutique hotel called Emporium Hotel South Bank (I am dedicating a whole separate blog post to this, so stay tuned), there were video interviews of each of the 5 finalists presented. Each video is around 2 minutes long and consisted of images or videos being added in to share in the impact of the story.

I was in tears watching the videos, then mine, which was last to be presented, had me in a complete blubbering mess. I was so embarrassed as it was MY story and I know this sooooo well so it surprised me that it impacted me the way it did. I assume it was a build up of emotions felt on the night, I was incredibly anxious but I was also very overwhelmed, so once the tears started I couldn't stop.

I am sharing my video to facebook, but it is available on youtube too and will embed it below at the end of this blog post.

Please keep in mind that the original video was 22 minutes long and was chopped down to 2 minutes for the ease of viewing, so a lot of important points I made were missed. I did also thank my friends and family and also those who read my blog and  my tribe who encourage me (you guys), so I don't want anyone to be upset if they didn't hear it mentioned (because it was).

If you have an ostomy, or know someone with an ostomy who has a story to share and have done something inspiring or had a comeback post ostomy life, please let them know about the awards. It could be something like pre ostomy life you were too sick to travel so once you had an ostomy you travelled, could be you returned to work, you did something you have always wanted to do, you started a movement to inspire others, you went back to uni and graduated, or you found yourself and the joy of life from having an ostomy.... or it could be whatever your heart desired that you feel you made a great comeback thanks to your ostomy.... 

The Great Comeback is entirely your own comeback after ostomy life and could be anything, or could be a number of things, it is different for each person.

To apply you need to submit your story via the site, you do need to include certain aspects of your story pertaining to:

  • How life changed or was affected by your/their medical condition and having an ostomy
  • How you/their Comeback was achieved and the positive effects that have resulted
  • The role that others (family members, nurses, surgeons) played in your/their Comeback
  • Any current activities or interests that you/they are now able to enjoy or participate in, and any specific dreams or goals that you/they have accomplished or wish to accomplish in the near future
  • The learnings or advice from your story that others might find beneficial

I wrote my story out first in a word document and then copied/pasted it in the appropriate sections. I used the aforementioned topics as headings for each part of my story.

**Please note: the drop down box doesn't have NSW available to be selected, they are aware but have said to choose any state but write somewhere that you are from NSW. They are in the process of fixing this error up along with updating their site too.

If you have a stoma nurse who is amazing and deserves to be recognised, please nominate them too! 

If you have any issues with your or your stoma nurse nomination, please reach out to convatec directly via email

My video:

I do encourage everyone to apply, the program is a great way to not only share your story but to meet other members of the ostomy community. The awards are all about empowering and inspiring ostomates that there is still a life to be lived and enjoyed after surgery. I had a lovely night, which I will share in more detail in a blog post to come. 

Thank you to Convatec and the judges for choosing me as the 2017 winner and I can't wait to see what is to come.

 

Posted by: Talya AT 12:52 am   |  Permalink   |  Email
Sunday, June 17 2018

 Attention:

Calling all young females (u/55) living on the Mid North Coast or Coffs Coast with a stoma, check out this exciting and new FREE event happening in August!

My stoma nurse has been excitedly organising this event and I was honoured to have been asked to design the flyer, but I was even more honoured to be asked to speak on the night as one of the speakers.

  The event is FREE and is open to all women with a stoma and under 55 from the area, if you're willing to travel you can come along, just make sure you RSVP.

  If you have any dietry requirements aside from the stoma, let the stoma nurses know and call 0266567804, that way everyone is catered to.

  The night is going to be a fun night with the chance to get to meet other young ostomates under 55's and the hopes of connecting each other to form friendships as ostomy life can be rather lonely for some.

  There will be a fun activity for all to join in and will also have reps from different ostomy companies there with samples or to speak more. Guest speakers will include Allied health professionals as well as myself.

  This event wouldn't be at all possible without the fundraising done by the Coffs Coast Crafty Crew (scrapbookers) in April 2016, as well as the hard work from the organising team of stoma nurses.

I am really looking forward to the night, and looking forward to meeting others from the area. Whether you're from Port, Grafton or in between this event is open to anyone who would like to come, has a stoma and is under 55 and a female.

Did I mention it is FREE and catered?

Can't wait and I will see you there!

Posted by: Talya AT 11:04 pm   |  Permalink   |  0 Comments  |  Email
Wednesday, April 18 2018

Stoma Nurses are the heroes of the ostomy community, well I know I wouldn't have made the last 5 years without my wonderful nurse by my side. So it was why it was an absolute honour for me to have been asked by the WOCN society to contribute to a tribute video they were collating for WOCN week, to say thanks for our nurses.

It was even more of an honour as it was to mark 50 years of WOCN contribution, and I felt in someway that it was a way for me to leave a mark in the world to say thanks to my Nurse and all the nurses out there. I am big on saying thanks and ensuring that I say thanks for those I love or those who have made an impact on my life.

This week 15th-21st April, is the WOCN appreciation week. WOCN stands for Wound Ostomy Continence Nursing, in Australia this is a Stoma Nurse who is also a Stoma and Continence Nurse.

If you wanted to see the tribute video, here it is. If it doesn't load below the link is here.

Thank you to all of the nurses for all that they do to help ostomates navigate life with an ostomy more smoothly. Most importantly, thank you for having our backs.

OstomyConnection shared their thanks for the amazing WOCN too, have a read of their post here.

Congratulations to the WOCN society on celebrating 50 years of service! And thank you for everything!

Posted by: Talya AT 11:17 pm   |  Permalink   |  0 Comments  |  Email
Monday, February 12 2018

Please Note: All views in this blog are my own (and I don't claim to speak for or on behalf of anyone other than myself)... also, spoiler alert if you haven't yet watched episode 14 of the Good Doctor. I am just sharing my dismay at how something that saved my life was shown so negatively inflicting a stigma that so many fight to erase.

I have finally got around to catching up on the most recent episode of The Good Doctor, which I was rather enjoying up until this week. 

☟☟☟☟☟☟

Let me start by sharing (an ironic) quote from the episode:
“Questions are good: Leads to awareness and understanding. Who knows, even acceptance.”
- Season 1, Episode 14 titled "She"

The irony is that they could have shown more compassion surrounding how they approached the idea and livelihood with an ostomy.

Instead, they made the idea of an ostomy as this tragedy and that it was THE worst thing to happen in life. I get that it is a show, it is made up, but it doesn't make those living with the conditions feel any better or at ease knowing "it is just a made up TV show that thinks this" when the reality is so many look down on life with an ostomy and struggle to see that a life can still be lived....

"I’d rather an ostomy in tow than a tag on my toe" - Talya Goding

I really was enjoying this show and often talked of the compassion felt in each episode, but this week I find myself as someone with an Ostomy to be disappointed in how it was perceived and quite angry too.

Maybe some more consultation from those with lived experiences could better make the show better.

Just an idea?

Myself and so many in the community work tirelessly to try and help people understand a life isn’t over with an Ostomy and comments on tonight’s show sets our work back 10 steps... arrogance isn’t helping anyone.

Ostomate and proud!
I took to twitter too to share my frustration and dissapointment, but I also wanted to write a proper post here that hopefully can show the inspiring side to ostomy life too.

 

Here are what other ostomates and advocates said about the episode too:

No You Cantcer @NoYouCantcer

Here are some ostomates who inspire me and others:
I know that for many an ostomy is an emergency and can come as a shock; I know that for many (like myself and others) they have many issues with their stomas and constant issues; I also know that It can take some a long time to adjust to ostomy life and it can be rather hard; some struggle a lot with adapting and this affects their mental, social, physical and financial health.

But then there are other ostomates who have regained their lives and done things they never would have imagined, because of their ostomy and because they had the surgery, that in their cases were life-changing as much as it were life-saving.

I will introduce you to Zoey Wright, Laura Zapulla aka @stoma_licious, Sam Abarca aka @Aussie_Ostomate, Gaylyn Henderson aka @Gutlessandglamorous, Blake Beckford and Dana Marie. You may have heard of these guys before or seen them on instagram, you may remember Laura and Sam from my 20 Aussie Ostomates on Instagram post.

While these are just 6 ostomates, there are so many others out there showing life with an ostomy can still be lived and loved, but also that this can be a second chance many didn't have.

I am sharing these 6 ostomates because they have inspired me and I know they will inspire you too!

☟☟☟☟☟☟

Introducing Zoey Wright @zoeywrightx - Pro Fitness Model:
Zoey is such an inspiration to many! She is a Pro Fitness Model with an ostomy, she has helped inspire so many others with IBD and an ostomy to do fitness and to also be a model too. She helped many, including myself, see that fitness is a reality with an ostomy. She shares videos, words of wisdom. She is stunning and beautiful and incredibly courageous to boot! Zoey has an ebook launching soon, so keep an eye out for more deets. Find her on: Instagram Facebook Twitter 

Introducing Laura Zapulla @stomalicious - Ostomy travel blogger:
In the 6 months post ostomy surgery Laura travelled 3 continents, 17 countries over a total of 10 months - all with her ostomy in tow! Laura helped me to realise that travelling with an ostomy is achievable and can happen. I know she has helped many others to see this too. Laura loves to get her bag out on her travels and below is pictured in front of the iconic Eiffel Tower! Laura had always had a dream of travelling and living abroad and her health put a halt to her plans, now she lives in London and travels every chance she gets. She shares her tips for travelling with an ostomy and living abroad on her blog and social media. Find her on: Instagram Facebook Blog

Introducing Sam Abarca @aussie_ostomate - RN with an ostomy and training to be a STN too:
Sam is an Registered Nurse (RN) from Australia who became an ostomate after living with IBD. She had surgery and 8 months later she was back in her scrubs and helping to save lives everyday! She documents life as a nurse with a stoma, including pesky bag leaks, but she continually inspires others whether it is running for a marathon or training to be a Stomal Therapy Nurse, or even helping new ostomates as they adapt to life post op. I know my STN is my rock and I couldn't have done this without her, and I know how valuable a good STN is to an ostomate, so Sam having her experience as an ostomate is really going to be such a resource and tool. Wishing you all the best as you finish your STN certification Sam x Find her on: Instagram

Introducing Gaylyn Henderson founder of @gutlessandglamorous - helping to inspire the beauty in all of us:

"Anything that has the power to save a life can be nothing but beautiful!"
- Gaylyn Henderson

For over a decade Gaylyn adapted her life around her pain, her health issues caused from her IBD and struggling to find normalcy. It affected her emotional health too. It was then when she had her total colectomy and became an ostomate that she regained her love of life again. She often has spoken out about the stigma attached to having an ostomy that was the reason she held off for so long. Determined to change this for others, she founded the Gutless and Glamorous foundation with aims at helping to inspire and improve the lives of people with chronic illness and pays special attention to those with an ostomy or need to undergo life altering surgeries. She said (in an interview with BlackDoctor) her ostomy "saved my life and I want to highlight that those living with one can be both #GutlessandGlamorous. It is my goal to help erase the stigma." I think she has done an incredible job and believe she deserves a huge applause for all her tireless work from advocacy, support, education and fundraising for a cure. The world is a better place because of people like Gaylyn. Find her on: Instagram Facebook Twitter Blog

Introducing Blake Beckford @Blake_Beckford - Model, Body Builder and advocate:
Blake battled bowel disease for over a decade which led to him needing surgery for an ostomy. Blake became determined to get back into shape and regain his bodybuilder career and it led to him becoming a model. He has inspired ostomates around the world to get into shape and enjoy fitness, he shares tips and videos on his blog and socials. He even founded a site called OstomyReviewer which is this amazing site where you can rate and review ostomy products and see what other ostomates have said about it before you have ordered or purchased it, how genious and is such a good platform too! Blake started the hashtag #myillnessisnotyourinsult after ostomy life was insulted by some leading "news" sites and he tirelessly advocates and fights for ostomates. Blake is often quoted saying "my bag gave me a second chance" and he tries to be a positive role model for ostomates, continuing to instil hope in others. Find him on: Instagram Facebook Twitter Blog

Introducing Dana Marie Arnold @lovedanamarie - country music singer/songwriter, recently married:
If you haven't followed Dana on insta yet, get onto it. She is so positive and beautiful, she is an amazingly talented country music singer/songwriter (I love her music) and her feed always has you feeling warm and fuzzy. Her love of life and gratitude for all things, including faith, is contaious and she is so down to earth. She got married recently to her husband Tanner and looked absolutley stunning on her wedding day. On her blog she shares some great advice on living with a stoma, how faith can help you heal and more importantly, she shares tips on how to love yourself bag and all. I actually first discovered Dana back in 2015 when I came across her online course she had for "rock the bag" where she helped you find confidence and to love yourself post ostomy surgery, I started following her online and her feed constantly leaves me feeling positive. I'm not religious but I find comfort in her words at times. Do yourself a favour and follow her, you won't be disappointed. Congrats Dana on your wedding Day too! Find her on: Instagram Facebook Blog

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I have talked before about how my ostomy gave me my life back and how it saved my life, my ostomy is the reason I get to cherish the gift of each day I wake up, my ostomy isn't perfect and is complicated but it gives me life and that is precious. In the future I hope that there is more acceptance for life-altering and life-saving surgeries like an ostomy and that it is more accepted.

This is why I started my blog 5 years ago, so that I can share life with an ostomy and hope to inspire others to live their best lives. I am so grateful now that there are so many wonderful ostomy advocates and bloggers on social media.

My wish is that in 10 years there won't be a stigma for ostomy life, that ostomy life will be accepted and not made to feel embarrassed for pooping different... I have seen how much the landscape has changed in 5 years and it gives me hope for future ostomates and the next generation of ostomates that they will feel love and acceptance and never have to feel ashamed for something out of their control anyway.

As I say all the time, I'd rather an ostomy in tow than a tag on my toe, ostomy life has been a rollercoaster ride for me, but it has also gifted me the joy of living too - so I will always be grateful for that.

 

Posted by: Talya AT 11:43 pm   |  Permalink   |  0 Comments  |  Email
Friday, February 09 2018

I have had the pleasure of connecting with some incredible ostomates over the years, even had the chance to interview and chat with them for my magazine, which is always a great privilege. Some have even become great friends too.


My Interview with Krystal on Ostomyconnection.com

Last year I was honoured when Krystal Miller, who is an Aussie ostomate/advocate/IBD warrior and blogger more famously and belovedly known as Bag Lady Mama online, allowed me to interview her for my magazine. She was the cover ostomate for issue 2 and allowed me to get down and deep with my readers, and had a no filter no question off limits type interview.

Ostomyconnection.com reached out after the issue went live and asked us if we wouldn't mind if the interview was republished and edited to suit the readership and the site.

So last month I opened up my inbox to see the latest interview went live on their site. I was so excited to see how many were sharing the article around social media and how many loved the interview.

As a writer, or maybe it is just me, I tend to doubt myself A LOT - I mean constantly - so I always worry that people won't like what I have written or that it wouldn't be read/enjoyed.

I saw within a couple of days there'd been something like 888 shares, this gave me this huge smile and sense of "maybe I am doing something right after all" but to know so many liked it really made me so proud. I think I used the term 'proud as punch' on twitter, but I honestly am.

Of course I know my interview wouldn't have been what it was if it weren't for my wonderful interviewee, Krystal.

If you want to read the interview on OstomyConnection the link is here.

If you want to read the original interview or to read issue 2 of the ostomistic life magazine the link is here.

You can also find Krystal aka Bag Lady Mama online via:
Instagram @bagladymama
Facebook @bagladymama
Twitter @bagladymama
Or her site/blog

5 years ago I took a chance on myself and started writing about life with an ostomy, and I am just so grateful to the opportunities and people I have met along the way.

P.S I have another interview/article on another Aussie ostomate, Laura Zapulla who blogs at stomalicious, talking about how she has inspired and shown ostomates that you can have bag will travel and that having an ostomy doesn't stop you from living the life you are able to. She recently moved abroad which is a lifelong dream. So I am excited to share that interview soon. Laura has shared articles for me in my magazine about travel with an ostomy too. 

Posted by: Talya AT 11:03 am   |  Permalink   |  0 Comments  |  Email
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Talya Goding - Feeling Ostomistic   talya@feelingostomistic.com.au  |  0447 426 860

Thank you for stopping by Feeling Ostomistic. It has taken a lot of courage to share my story and I ask that you show me and my site/blog respect and courtesy. Views expressed in this blog are my own and I am not a nurse or a doctor. If you need medical advice please seek your medical practitioner.

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