Wednesday, January 15 2014
For those living in Australia, you would know how hot this summer has been! In fact, Australia is the hottest country in the world right now! What I never realised was just how much more the heat would effect me now that I have an ileostomy.
This is my first summer since my surgery and I just keep learning more and more about living with a stoma. Over the last couple of weeks I haven't felt too well and I just couldn't put my finger on why! Then it dawned on me yesterday that it has to do with my stoma and being summer that the heat has been affecting me!
We already know that everyday you are at risk of dehydrating due to ileostomy output, but I realised it is heightened when it is hot. I was drinking bottle after bottle of water lately and one of my 'Maxuus' electrolyte drinks and just couldn't keep my fluids up enough. So I realised when it is hot that I need to drink at least two of these drinks to keep from being dehydrated.
Keep an eye out for my post about 'Ways to reduce a watery output' and 'How to recognise if you are dehydrated'
You are incredibly courageous. I had to have a temporary ileostomy for three months back in 2007-2008 for a rare form of gynaecological cancer and because it was summer, my bag was constantly sliding off, exploding etc. Having Cystic Fibrosis didn't help with the amount of salt that I excrete through my skin, and my skin would turn red raw from the adhesives. I drink a solution called Glucolyte - so much better than sports drinks as it contains far less sugar and more electrolytes. Maybe ask your doctors about it? It's great stuff. I wish you'd had a blog when I had my stoma - resources were pretty thin on the ground back in 2007 in regards to how young people cope with stomas, so from my then 30 year old self - thank you :)
Posted by Carly-jay Metcalfe on 20/01/2015 - 11:09 AM