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Feeling Ostomistic
Saturday, March 30 2013

Wait! Did I read that correctly? Ostomistic not optimistic? Yes your eyes aren't playing tricks you did read correctly - AND no, I am not an idiot and cannot spell - You read correctly.

OST-OM-ISTIC: Optimism through Ostomy

For those who are wondering what a stoma or ostomy is I hope to teach you and help you learn more about it.

I am so happy that you asked! My name is Talya and I am a bright, bubbly and creative 22 year old. But I am not like your ordinary or usual 22 year old.. But I am me and that is all that matters!

I have a journey that I would like to share with you, to hopefully help you, to inspire you, to empower you, and to raise awareness for different struggles faced with this horrid disease, which I am sure affect you too!

I will be having surgery in a week to have my full large bowel/colon and rectum removed with a permanent illeostomy. And hope I can help you through sharing my journey!

WHY because I have a inherited bowel condition called F.A.P as it is known in short (Familial Adenamatous Polyposis), a condition that if left untreated develops into colorectal cancers. (I will explain more about FAP in my next post). So because of this condition I need to have this surgery done as the polyps have started to turn cancerous.

A lot of people keep asking me why such a drastic surgery or tell me to get a second opinion- even family (who refuse to understand the condition) but I know this is best for me, for my quality of life and for my health.

I wanted to start this blog as I have been trying to search and find information (especially from a young person) about what to expect, but I keep finding cases from older people. That doesn't help me in feeling like I can relate or in helping me to feel less alone. It actually has done the opposite! I feel so isolated and alone from everything and everyday is a daily struggle, I won't lie about that.

So I want to share my experiences, tips I come across, reviews of different products but most importantly I want YOU to know YOU are SUPPORTED and YOU ARE NOT ALONE!

One of the reasons I am feeling OSTOMISTIC is that I can actually do a lot more stuff. At the moment I cannot really leave my home or if I do every visit is planned around what access and QUICK ACCESS I can find to toilets or bathrooms. Even staying or visiting family I refuse to stay somewhere where there is only one toilet (as most times it is an hour or less) or somewhere the toilet is small and pokey.

I am even unable to do exercise as I have severe stage 4 endometriosis/ recto endometriosis and combined with the bowel condition (and worse then IBS) I am  in so much pain even for 10 minutes of exercise and I can't be away from home because I need to be able to have quick access to the toilet.. It is horrible especially when and after I eat. I have reduced my daily meals to 1 meal a day (wrong I know) but I just couldn't handle the horrid experience when I ate. Even only having had 1 meal to eat I still go to the toilet around 25-30 times a day. So I am ostomistic for what I can do afterwards.

I don't even have a social life or leave the house in fear of having accidents - and trust me it is mortifying - you might have experienced it or a close call?

So I welcome you to joining in this Ostomistic journey with me.

If you wish to be kept up to date, please sign up on this blog.

Lots of love,
Talya xx

*disclaimer any information represented on this blog is from my own personal experience. I am not a doctor*

Posted by: AT 06:02 pm   |  Permalink   |  1 Comment  |  Email
Whenever I read OSTOMISTIC it makes me smile, and I can feel your optimism and positivity in each post, but more so your honesty. You keep it real and share your emotions and feelings like above how you said "I started this blog... because I felt so isolated and alone...". Reading your posts honestly makes me feel less alone... and for that I Thank you!
Posted by Sarah on 03/10/2014 - 09:46 AM

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~  Living with Familial Adenomatous Polyposis - Effects of FAP  ~

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Thank you for stopping by Feeling Ostomistic. It has taken a lot of courage to share my story and I ask that you show me and my site/blog respect and courtesy. Views expressed in this blog are my own and I am not a nurse or a doctor. If you need medical advice please seek your medical practitioner.

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