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Feeling Ostomistic
Sunday, March 13 2016

I first became a member of the ostomate world back in May 2013, when I had all of my large bowel and most of my rectum removed in a procedure to save my life from the perils of bowel cancer.

It wasn't until July 2015, that I experienced my first really bad bag leak during the middle of the night resulting in soiling not only the doona and sheets, but the mattress protector too.

Worst of all, I wasn't even at home. I was staying in a hotel for a few days in Melbourne.

I had to call the front desk at 3am in tears asking for fresh linens, when they replied they don't have any until room service come in later that morning and that it will be best to change rooms. I was absolutley humilated and mortfied but the guy reassured me that it was okay and it wasn't the worst he has seen. (Got me thinking about how dirty some people can be!)

So when I continued that short holiday (was actually down there for a big bloggers meeting, which was exciting) and then when I got home I made the decision to sleep with towels on my bed and wrapped around my belly, that if my bag did leak it would be somewhat protected and not cause a mess.

Afterall, my mattress and bed cost me $6k and it is white leather, so I am rather protective of my bed... initially I was too scared to sleep in it with the leaky stoma... and it isn't just at home I am scared of a leak, I am hesitant to stay at other people's houses for that reason.

I know that you're thinking "just get a mattress protector", well I have one but I worry it won't give me a lot of protection if it is a heavy leak (which most are).

And it got me thinking about what disposable and cheap products could I use to help give me peace of mind when sleeping.. and I came up with one great one (and will also share what one reader's suggestions were too).

So if you have a unpredictable and leaking stoma like me, here are some affordable ways to protect your sheets.

Cheap, thick and disposable table cloths
I was lucky that I had a garage filled with all these party supplies I wasn't using after purchasing and attempting to sell through a failed business venture.. so I have been putting the table cloths to great use and they are rather thick and durable and best of all cheap and disposable. I know the reject shop or other cheap shops sell them too

Some suggestions from a reader were:
Plastic shower curtains
Garbage bags torn open
Rubber-backed curtains

Update: What I use now and how I protect my linens

Since writing this post a year ago almost (it is now May 2017), I have been trying out new methods and ideas to help protect my linens and mattress from my leaking stoma in a way that was easy to manage and was being savvy too.

So I found a product called a "Kylie" which is a quilted mattress topper that has a rubber/waterproof underlay so nothing will seep through to the mattress and sheets underneath. I found these at a local homecare aid store for around $40 for a double, I purchased a couple through the help of a local service and have one on my bed and one spare.

So now when I do have a leak, I simply take the soiled Kylie off the bed and into the wash and put the new one on the bed. I find it is easier for me to manage when I am at home on my own while hubby is at work.

Here is a look at how I place it on my bed. I make my bed/sheets as normal, I put the kylie down then a disposable bluey as an added measure. I know the Kylie is meant to go under the sheets and tucked under the mattress, but given how heavy my mattress is it is not something I can manage/change on my own.... so this is what works for me and for a year now I haven't looked back. I also take a kylie with me when I go and stay at family or friends places too.

 

Have you found something that helped you during leaking bags of a night when you were asleep? Comment below to share or join in the conversation over on the facebook page.

Leaking Stoma Tip:I just got home from being away for a couple of days staying with family.It wasn't the first time I...

Posted by Feeling Ostomistic on Sunday, March 13, 2016
Posted by: Talya AT 06:41 am   |  Permalink   |  0 Comments  |  Email
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~  Living with Familial Adenomatous Polyposis - Effects of FAP  ~

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Talya Goding - Feeling Ostomistic   talya@feelingostomistic.com.au  |  0447 426 860

Thank you for stopping by Feeling Ostomistic. It has taken a lot of courage to share my story and I ask that you show me and my site/blog respect and courtesy. Views expressed in this blog are my own and I am not a nurse or a doctor. If you need medical advice please seek your medical practitioner.

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